2012

So You Want to Write a Book? My Best AdviceI started a blog. At first, it seemed like eating my spinach, something I had to do in order to achieve the long-term goal of writing books. I worried...

I don't usually write about writing, but I am a member of the Redbud Writer's Guild, and I submitted a post for their blog, which is all about writing. Here's the beginning, with a link to the Redbud blog, where you'll find countless other posts about writing if you're so inclined... ...

Imagining Your Child's LifeWhat would it take for you to imagine life with a child with a disability?

For every pregnant woman, a baby remains a hypothetical being for a long time. Even once that baby is born, parents don't know whether she will love music, whether that straight hair will all fall out or turn curly or change color, whether he will fight with his siblings, whether ...

Abortion and the ElectionObama or Romney could employ a practical approach to abortion reduction as a way to attract swing voters, so why is it a taboo topic?

I have a new post at parents.com, "Why Aren't Obama and Romney Talking About Abortion?"

It begins:

My kids love to hear stories about when they were born. They know the quirky details—that Penny was easy to push out, that I threw up on the way to thehospital with William, that ...
Who Are You Voting For?Who are you voting for in November of 2012?

Sometime later this week my third post with parents.com about the election will run. My job is to represent the middle way, the moderates, the people who might just vote for a Republican or a Democrat. People like me. And so perhaps it comes as no surprise that I find the arguments ...

Should abortion be an automatic option with a prenatal diagnosis of Down syndrome?A condensed version of the debate within the Down syndrome community about whether or not those of us with children with Down syndrome should allow abortion into the conversation surrounding prenatal diagnosis...

I was headed to a wedding out of town last week, so I asked my online friend Stephanie Meredith to offer a guest post about resources for women with a prenatal diagnosis of Down syndrome. Stephanie is the author of the booklet created by Lettercase.org, which was prepared with ...

Explaining Accidental DeathMy thoughts and prayers surrounding every parent's greatest fear...

It seems somewhat out-of-keeping with the tone of the summer, with barbecues and laughter and fireflies and staying up later than usual and sandy feet and hydrangeas, but all summer long, in the midst of the delightful moments, I have also been thinking about how easily those ...

What to do when you're feeling overwhelmed...What I learned when my husband had to be away for six days...

In mid-July I was alone with my kids for six nights and I happened to come down with a nasty cold. We had just moved from New Jersey to Connecticut, so the house was still in boxes, and my list of things I was supposed to have done before Peter went away seemed longer than ever. ...

Resources for Women with a Prenatal Diagnosis of Down syndrome

As many of you know, I've been working on an ebook about prenatal testing for a few months now. It's in the final stages, and one of the things I want to include in the book is resources for women and their families when faced with a prenatal diagnosis of Down syndrome. I asked ...

How Much Does God Love You?Last fall, my I wrote about my fears about moving. Yesterday, I learned how those fears had been answered.

I play a game with my kids. When they are pouting or withdrawing from me or disappointed with me or think I'm disappointed with them, I hold up my thumb and index finger and say, "Do I love you this much?"

They know the answer by now, but the first time, they looked at me, a ...

The Best Books About DisabilityI was asked to come up with my "Top Five Books About Special Needs" for the July/August issue of Christianity Today

I was asked to come up with my "Top Five Books About Special Needs" for the July/August issue of Christianity Today. In all honesty, they aren't necessarily my top five. I get paralyzed, first of all, at the prospect of naming a favorite anything, especially when it comes to ...

What Summer Camp has to do with TaxesThis simple experience of play and learning and exploring and resting seems to me like a quintessential American summertime, and yet I was reminded recently that my children’s summer is a mark of privilege.

I have a new post up for the "Moms Decide" section of Parents.com, "What Summer Camp Has to Do with Obama's Tax Plan." It begins:

My memories of summer include bug bites, games of kick-the-can, swimming lessons, and countless hours curled up in a chair reading. My kids have finally ...

Lies I Used to Believe About DisabilityWhen our daughter Penny was diagnosed with Down syndrome shortly after birth, I discovered that I had unwittingly believed two lies.

I'm headed to Chicago tomorrow to speak at the Bethesda Institute's Summer Institute on Theology and Disability. They asked me to write a blogpost to introduce some of the thoughts I'll be sharing on Wednesday. I wrote:

When our daughter Penny was diagnosed with Down syndrome ...

Worth Reading: on Faith, Disability, and Busyness

Really beautiful and profound reflection on what it means to be the body of Christ through reflection upon the art of Tim Lowly, whose daughter Temma has severe disabilities: The Broken Made Whole by Mark Sprinkle. He writes:

There is a sense in which we look at Temma and we ...
What Does "Preventive" Care Mean? Further Thoughts on Prenatal Testing, Abortion, and Down syndromePrenatal testing was developed for the purpose of selective abortion, but has selective abortion been the result? And what should our government have to say about it?

What does "preventive" mean?

Mark Leach (whose guest post this morning, "Supreme Court Unexpectedly Upholds Regulatory Elimination of Down Syndrome," created quite a stir) and many others take it to mean that the government is advocating the prevention of the birth of children ...

Supreme Court Unexpectedly Upholds Regulatory Elimination of Down SyndromeIs a new type of eugenics the unexpected result of the Affordable Care Act?

I asked Mark Leach, a lawyer whose daughter has Down syndrome, to offer a reflection on how the Supreme Court's recent ruling regarding the Patient Protection and Affordable Care Act would impact the lives of individuals:

A common reaction to the recent Supreme Court decision ...

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