2012
I had the pleasure of meeting Ginnie Breen, co-author of I am In Here: The Journey of a Child with Autism who Cannot Speak but Finds her Voice a few months ago, and more recently the privilege of interviewing her about her experience as the mother of Elizabeth, her 14-year ...
In honor of summer, the Patheos Family Channel is giving away copies of books by its authors. Click here to leave a comment and be entered into a drawing to win a copy of A Good and Perfect Gift, and click here to see the full list of titles being given away.
I would recommend:
If this blog has seemed a bit disjointed for the past few weeks, or if you have tried to email me and feel as though the response might never come, well, we've been moving. The process started months ago, when I started to spend my afternoon hours with William "organizing." ...
As Bonnie Rochman reported for Healthland on Time.com last week:
Of the myriad things that can go awry with pregnancy, Down syndrome is perhaps the best known. In the past year, several new tests have become available to detect the condition prenatally, as early as 10 weeks of ...
I shared a post last week describing Jill's House, a facility that provides "a rhythm of care" through respite services for children with special needs. Today Jennifer Reynolds, who works at Jill's House, shares some thoughts about her experience:
Every child we have served at ...
I mentioned a few weeks ago (What Matters to you During this Election?) that I would be blogging about issues related to the upcoming election for Parents.com. My first post is up, and it is a response to the Supreme Court's recent decision to uphold most of the Affordable Care ...
It's not true across the board, but a remarkable number (dare I guess, a majority) of people who have children with Down syndrome seem to believe that their children are indeed special, in the positive sense of that word. Other parents say things like, "Our whole family has ...
I have an interview over at The Well, a "virtual gathering place for graduate and professional women," about A Good and Perfect Gift. I was grateful to Marcia Bosscher for her insightful questions which included:
In A Good and Perfect Gift you write, "It was as if having kids ...
We went to a graduation party a few weeks back. It was a lovely afternoon, with family and friends gathered to celebrate the graduate at her home. We brought all three kids with us, and we faced a decision. There was an open space with food and drink and tables, and then an ...
I have the privilege of serving as head of Jill's House, a miraculous ministry to families of children with severe intellectual disabilities.
Jill's House, located just outside of Washington, DC, is an overnight facility that provides long breaks to families who are weary of ...
Meriah Nichols, who blogs at With a Little Moxie, recently posted a joint interview with George Estreich, author of The Shape of the Eye, and yours truly. She asked us both ten questions, including whether we would change anything about our books if we could. I answered:
There's ...
Last month I had the privilege of speaking at the Bloorview Rehabilition Center up in Toronto. I spoke about the relationship between identity and ability. Here's a short clip from the talk:
Is your identity comprised of what you do? Or who you love?
I used to sing lullabies, and every night Marilee still hears "Close Your Eyes" or "Sleep My Child" when she goes to bed. Penny and William have graduated, of their own doing, and now they want me to sing "church songs." It started at Christmas, when we went through three months ...
I'm excited to report that Parents.com has asked me to offer the perspective of a political moderate through a series of personal reflections on the upcoming Presidential election. Along with Sharon Lerner (the "liberal" voice) and Suzanne Venker (the "conservative"), I will ...
They've done it again. Yes, scientists have accomplished something incredible. And yes, their discovery poses grave ethical concerns that probably won't be addressed sufficiently and as a result people may well get hurt and lives may well be lost. It seems to go this way. To ...