I had a roommate in college who went out (to a party, that is) four nights a week. If she returned to our room at all, it was usually long after I had gone to bed. Much as I enjoyed her company, I saw us as very different. I was organized and well-behaved. She was wild and ...
A few years back, I read a beautiful and heart-wrenching article in the Boston Globe about a family who had adopted a child from Uganda named Ruth. I reached out to the author, Meadow Rue Merrill, and an online friendship budded in time. Since then, I've had the privilege ...
I left our pediatrician's office feeling somewhat self-satisfied. The doctor had asked for a report on my three-year old daughter Marilee's use of iPads, iPhones, and television. She came in under the American Academy of Pediatrics recommendations for hours of screen ...
The big news of the week in my world is World Down Syndrome Day, celebrated today because the technical name for Down syndrome is Trisomy 21. Trisomy means three-chromosomes. People with Down syndrome have three copies of chromosome 21 instead of the typical pair. Thus, 3-21. ...
Every week, I read heartwarming stories about Down syndrome: homecoming kings and queens, young men and women going to college, starting businesses, becoming models and actors, running marathons. And every week, I read horror stories about Down syndrome: rape that only becomes ...
People sometimes ask me what I've "done right" with Penny. They ask because Penny reads and goes to ballet class and practices piano and orders her own meal when we eat at a restaurant. They ask because she is "high functioning." I suspect many people ...
It's a bright Sunday afternoon at the park. My youngest daughter Evangeline giggles in an adaptive swing while her dad dutifully pushes her back and forth. We adopted Evangeline, who has Down syndrome and autism, from Ukraine. Elaina and Zoya, our two older girls, with ...
