When our daughter Penny was a baby, I took her into Panera Bread at lunchtime. One of the women who worked there approached me. She said, "I love looking at your baby." Penny has Down syndrome, and I'm never sure what to make of a comment about her appearance. But the woman ...
I'd love to meet some of you face to face, so I wanted to let you know about the times I'll be speaking in the next month:
Lawrenceville: Tonight, March 21, I will be leading a discussion about being a parent of a child with special needs in an age of exceptionality at the Special ...
Two hours after our daughter was born, she was diagnosed with Down syndrome. The pronouncement shocked and saddened me, but I also felt confused. I thought all people with Down syndrome looked the same: Flat nose. Thick neck. Epicanthal fold of skin around the eyes. Short stature. ...
There's a verse from Psalm 46 that summarizes the relationship between the practice of religion and the practice of spirituality: "Be still, and know that I am God." It's a prayer, an admonition, an encouragement. The two poles of this verse – be still, know God – together they ...
I'm sure some of you have skimmed the comments over on the Huffington Post from last week's article about Down syndrome and wrongful birth. But for those of you who haven't, here are some of the best and worst, and one of my responses. (I should add that my response here is ...
Over the course of the past five years, I've read news reports of a series of "wrongful birth" lawsuits in which parents won millions of dollars for the ongoing care of their children. In each case, the parents claimed they would have had an abortion if they had known ahead ...
There were no trumpet fanfares to mark the occasion or festoon of flowers dropping from the ceiling. Nobody took a picture so that we could one day look back and fawn over the day. And had you witnessed the event you would have thought nothing of the introduction between us. ...